Folks:
Because you are are beautiful people we have heard from many of you that you're unsure of what you can do at a time like this...but you want to help. There are two very important organizations directly related to our current situation who would benefit greatly from your generosity:
Histiocytosis Association of America - Jacob's disease is one of many under-researched, under-funded disorders that are affecting hundreds of thousands of families around the globe. Through the generosity of hospitals and medical staff, some projects have gotten off the ground to create a world-wide network around these diseases to keep the community as informed as possible about any positive developments in treatment. The HAA has broadened this community beyond the families and physicians directly dealing with the diseases, to include folks like you who can make a difference with even the smallest of contributions. We encourage you to read more about Jacob's condition, and ones like it that are leaving families with far fewer resources than those who are facing more mainstream illnesses. Check out the HAA Web Site, or go directly to the DONATE PAGE.
Tomorrows Children's Fund - We cannot believe the lengths our hospital has gone to make sure the Baron family is able to focus entirely on Jacob during this difficult time. Living an hour away, it has been very difficult for us to make sure Melissa can be ready for her commute to work after doing the overnight shifts with Jacob in PICU. Also, with Reis doing day shifts in the PICU and then driving home, only to return early enough to hand the car off to Melissa, their schedule has been brutal. Tomorrows Children's Fund has arranged for the Barons to have an apartment 2 blocks from the hospital for the duration of Jacob's stay. They have also committed to covering an enormous amount of our basic living expenses, to the degree that Reis has chosen to leave his position at SCI Fidelity Records. It's the generosity of this fund that is allowing the Barons to focus entirely on Jacob, and in turn bring far less stress into the hospital room with them. This organization completely gets it...that everything they are doing and paying for results in a more comfortable state for the family, and ultimately the child. You can find out more information at the Tomorrows Children's Fund Web Site. You can also go directly to the DONATE PAGE.
This list will surely grow as we continue on this journey, but right now these are great ways for you to show your support in this difficult time.
We Love You
Saturday, September 27, 2008
Subscribe to:
Post Comments (Atom)
2 comments:
Thinking of ya'll n we are sending many positive vibes...
much love,
The Fosters
Thinking about your sweet little guy. Sending positive thoughts. Missing seeing his little face.
Warm regards,
Cathy
Post a Comment